SOURCE: Jonah's Just Begun
BROOKLYN, NY--(Marketwire - Sep 17, 2012) -
Jill Wood, founder of Jonah's Just Begun (JJB), a non-profit organization focused on developing a cure for Sanfilippo Syndrome, a rare, fatal disease typically diagnosed in the preschool years, is calling on Facebook users to vote for her charity to help save her son's and other children's lives. Up to $250,000 could be awarded to JJB that will go toward clinical trials to develop a treatment for Jonah and thousands of children around the world suffering from Sanfilippo Syndrome.
Chase Community Giving's annual contest awards $5M to winning charities.
Voting ends Wednesday, September 19th
Jonah's Just Begun a 501 (c) 3 was founded in 2010 by Jonah's parents. JJB raises funds for medical research for the ultra rare pediatric disease Sanfilippo Syndrome, with emphasis on subtype C. Sanfilippo Syndrome is caused by a genetic defect, resulting in the body's inability to break down a complex sugar molecule. After a period of normal development, the child will start to present with delays in speech and cognition, develop behavioral problems, hyperactivity, sleep disturbance, seizures and profound mental decline. As the damage progresses, they become unable to eat or walk on their own and die before adulthood.